Barb and I attended a funeral for Steven last week, the son of Fidelia, a friend of ours from our Huntington's Disease (HD) support group. He died of Huntington's Disease, and there's still no cure. I'm experiencing very early symptoms, and our kids are at risk. This situation motivates us to write emails like these, and we want to help you help.
On Sunday, October 20, 1pm, we will participate in a walk to raise awareness and money for HD research. I'll also perform the song I wrote, "HD Blues" (listen at www.HDBlues.org).
Please check out my fund raising page at FirstGiving.com/fundraiser/brian-schrag/thw_dftw (you can also see the info below). At the page, you can donate or join our team, Brian's HD Blues. Please also pray.
These are the words you'll find at my web site, www.firstgiving.com/fundraiser/brian-schrag/thw_dftw:
Brian "Don't Forget to Play" Schrag
P.S. My sister Lynelle is sponsoring a team in Tucson Arizona. See her web site here.
I just did a studio recording of HD Blues at this address: www.HDBlues.org. It's a blast to listen to.
You may also be interested in seeing who people say I look like on this FAQ page.
On we go!
Here are the things on the site related to Huntington's Disease (HD):