Barb and I attended a funeral for Steven last week, the son of Fidelia, a friend of ours from our Huntington's Disease (HD) support group. He died of Huntington's Disease, and there's still no cure. I'm experiencing very early symptoms, and our kids are at risk. This situation motivates us to write emails like these, and we want to help you help.

On Sunday, October 20, 1pm, we will participate in a walk to raise awareness and money for HD research. I'll also perform the song I wrote, "HD Blues" (listen at www.HDBlues.org).

Please check out my fund raising page at FirstGiving.com/fundraiser/brian-schrag/thw_dftw (you can also see the info below). At the page, you can donate or join our team, Brian's HD Blues. Please also pray.

Thank you!

Brian

These are the words you'll find at my web site, www.firstgiving.com/fundraiser/brian-schrag/thw_dftw:

• Huntington's Disease (HD) is genetic progressive neurodegenerative disease causing gradual deterioration of movement, cognitive function, emotional control, and blurring of social boundaries.
• The situation: My mom, Marilyn, and I have it. My kids have a 50/50 chance of having it. There's no cure yet.
• You can help fix this by donating to HD research through this site. On Oct 20 (2013), my team–Brian's HD Blues–will participate in a walk in Dallas to raise money for this cause. If you're in the area, join the team and walk with us! You may even get a free "HD Blues" t-shirt....
• Your action points: 1. Donate to HD research from my "Team Hope" page. 2. Join our team if you can. 3. Listen to the song at HDBlues.org. 4. Forward this link to others who might want to help.

Thank you!

Brian "Don't Forget to Play" Schrag

P.S. My sister Lynelle is sponsoring a team in Tucson Arizona. See her web site here.

I just did a studio recording of HD Blues at this address: www.HDBlues.org. It's a blast to listen to.

You may also be interested in seeing who people say I look like on this FAQ page.

On we go!

Here are the things on the site related to Huntington's Disease (HD):

• Leaves - The song I wrote for Mom after she tested positive for HD.
• HD Blues - I wrote this song for my Dallas/Fort Worth HD support group. Apparently other people affected by HD connect to it, as well as people with schizophrenia, bipolar disorder, diabetes, acute anxiety, and other diseases. We're all dying of something.
• An Inside HD Story - These are my personal reflections surrounding the moment I learned I have the HD mutation.
• Make Life - A project I'm working on with the Huntington's Disease Society of America (HDSA) to encourage hopeful creativity in HD communities.