Huntington's Disease Stuff

4/20/2013

Here are the things on the site related to Huntington's Disease (HD):

Leaves - The song I wrote for Mom after she tested positive for HD.
HD Blues - I wrote this song for my Dallas/Fort Worth HD support group. Apparently other people affected by HD connect to it, as well as people with schizophrenia, bipolar disorder, diabetes, acute anxiety, and other diseases. We're all dying of something.
An Inside HD Story - These are my personal reflections surrounding the moment I learned I have the HD mutation.
Make Life - A project I'm working on with the Huntington's Disease Society of America (HDSA) to encourage hopeful creativity in HD communities.

Marilyn Royer

4/30/2013 01:24:10 am

Brian, I love your new web site. It is sooo easy to "get around" there. I have never seen one that is pretty and informative, along with your Schrag intelligent humor. I feel as if I am sitting with you
. Be praying for you and the opportunities coming up that gives you blessings to be STRETCHED for the sake of THE KINGDOM AND JESUS CHRIST. Hi to Barb, please. PS I noticed your mom's "nervousness" while they still lived in Salem, and just thought she was excited cause we were visiting...now as I reflect on those times I realize it was the HD raising it's ugly head. We pray for your parents very often. You and Barb, too.. Love M .

Marilyn Royer

4/30/2013 01:29:37 am

I think I should NOT have checked the notify me of new..................at the end of the last comment sent on 4/30/13. @11:20 am EDST. It was meant for Brian not for others, Sorry for sluggish brain dysfunction. M.

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